Useful Links

Parent/Carer Support Groups & Information:

 

The Hertfordshire SEND Local Offer

For people with special educational needs and disabilities (SEND) age 0-25 and their parents, carers and families.

 

Outreach

Outreach provision can support schools and businesses with strategies, resources, advice and support to secure improved support for a child/young person/adult with SEND needs.

Outreach leaflet

Referral form for schools

 

ADD-vance

Add-vance support and empower adults, children and families with Autism, Attention Deficit Hyperactivity Disorder (ADHD) and related conditions in Hertfordshire

 

 

Angels

Angels offers friendship, support, sharing of ideas and advice from professionals.

 

 

NAS Hertfordshire Branch

NAS Hertfordshire Branch work supporting families & people living with autism. Harc is the Hertfordshire branch of the National Autistic Society

 

 

Up on Downs

Up on Downs is a parent run organisation which supports families of children with Down’s Syndrome.

 

 

CommonSENse, Harpenden

CommonSENse is a support group for parents or carers of Children with special needs offering practical advice and friendship.

 

 

Phoenix

Phoenix aims to empower young people up to the age of 25 who have a hearing impairment.

 

 

Kids Hub

The KIDS East and West HUBs offer information and support for parents and carers of disabled children and young people aged 0-19 in Hertfordshire.

 

 

Down’s Syndrome Association

DSA provides information, support and advice for those with Down’s Syndrome and their families.

 

 

Down Syndrome Education International

DSE International is a national resource for children, parents, carers, teachers and researchers. Devises programmes to encourage children to progress, provides parenting skills and undertakes research.

 

 

The Communication Trust

The Communication Trust supports everyone who works with children and young people in England to support their speech, language and communication.

 

 

Afasic

Afasic supports parents with children who have difficulties talking and understanding language.

 

 

Contact a Family

Contact is a charity which supports families with disabled children by providing guidance and information, and bringing families together to support each other. They help families to campaign, volunteer and fundraise to improve life for themselves and others.

 

 

Herts Parent Carer Involvement

HPCI are an independent parent carer led organisation with a network of parent carers from all over Hertfordshire. Our aim is to improve services for our families by working alongside those providing services for children and young people with SEND (Special educational needs and disabilities).

 

 

IPSEA

Independent Parental Special Education Advice is a registered charity which offers free and independent legally based information, advice and support to help get the right education for children and young people with SEND. They also provide training on the SEND legal framework to parents and carers, professionals and other organisations.

 

 

SOS!SEN

SOS!SEN is a national charity aiming to empower parents and carers of children with SEN to tackle successfully themselves the difficulties they face when battling for their children’s rights.

 

 

SENDIASS

SENDIASS in Hertfordshire provides impartial and confidential information, advice and support to parents and carers of children with Special Educational Needs and Disabilities (SEND), and young people and children with SEND.

 

 

Families in Focus

Families in Focus provides parenting courses that support parents in their local community to bring harmony, balance and enjoyment to family life. Free courses available across Hertfordshire.

 

 

PALMS

PALMS are a family-led service working to understand and support the significant impact of challenges experienced by families of children and young people with learning disabilities and/or ASD.

 

 

Carers in Hertfordshire

Carers in Hertfordshire ensure all carers receive information, advice and support.  Enable carers to participate in service planning and decision making. A platform for the voice of carers.

 

 

Autism Education Trust

The purpose of the Autism Education Trust (AET) is to improve the education of children and young people with autism.

 

 

National Autistic Society

NAS Offers people with autism and Asperger Syndrome, their families and carers information, advice and support.

 

 

PDA (Pathological Demand Avoidance Syndrome) Society

PDA Society is a voice for PDA, running awareness campaigns and sharing information.

 

 

Hertfordshire Additional Needs Database

HAND provides news and information for parents and carers of children and young people with additional needs.

 

 

SPACE

SPACE is a support group for parent/carers of children and young people with Autistic Spectrum Disorder (ASD), Attention Deficit Hyperactivity Disorder (ADHD) and related conditions.

 

 

The Counselling Foundation

The Counselling Foundation provides specialist counselling services including, bereavement, EMDR for trauma, couples counselling and counselling for Employees across Hertfordshire and Bedfordshire from five easily accessible and BACP accredited centres.

 

 

Riding for the Disabled Association

RDA provide therapy, fitness, skills development and opportunities for achievement for disabled children and adults.

 

 

Healthwatch Hertfordshire

Healthwatch Hertfordshire represents the views of people in Hertfordshire for health and social care services, listening to feedback from the public and using this evidence to focus on the important issues for people who use services.

Useful Resources

SEND Code of Practice – Statutory guidance for organisations which work with and support children and young people who have Special Educational Needs or Disabilities.

 

SEND Code of Practice – A guide for parents and carers – guidance for parents and carers of children and young people aged 0-25 years who have SEN or a disability, describing how the new system that supports those with SEN is intended to work.

 

The Hertfordshire SEND Toolkit – guidance for anyone who has an interest in promoting the wellbeing and achievement of Hertfordshire’s children and young people with SEND.

 

BBC Children In Need Emergency Essentials Programme Leaflet – this programme supports children and young people who are facing exceptionally difficult circumstances.

 

ISL Contacts – Integrated Services for Learning DSPL areas 7 (St Albans) and 8 (Dacorum)

 

Partnership Group List 2020

 

Provision for SEND within DSPL7

 

Hertfordshire’s Professional Promise – Hertfordshire’s promise for how children, young people & young adults with SEND and/or disabilities and their families should be treated.

 

Services, Organisations and Resource Information

 

Understanding childhood – provides downloadable information leaflets for families and childcare professionals to help raise emotionally secure children.