Down Syndrome

Down Syndrome


What is Down Syndrome?

Down Syndrome is a genetic condition caused by the presence of an extra chromosome. Individual’s with Down Syndrome will have some level of learning disability and will need varying levels of support (NHS, 2019).


Click here to read some individuals’ with Down’s Syndrome life stories!


Down Syndrome advisors in schools / settings:

DSPL7 fund a Down Syndrome Advisor who visits to relevant schools and settings to discuss the child’s progress and to provide advice and guidance.  If a school or setting would like to take advantage of this service, please contact us. Please click here for the DSPL7 DS advisor Information Sheet.


Parent/Carer Support Groups & Information:


Up on Downs Hertfordshire – is a parent run organisation which supports families of children with Down’s Syndrome.


Upwards with Downs – is a registered Charity based in Harlow who offer support to adults and children with Down syndrome throughout Essex, Hertfordshire and adjoining counties.


DS Achieve – a Hertfordshire-based organisation which works with children and young people with Down Syndrome and their families.


Down’s Syndrome Association – provides information, support and advice for those with Down’s Syndrome and their families.


Down’s Heart Group – is a UK national charity offering support and information relating to heart conditions associated with Down’s Syndrome.


Down’s Syndrome Research – the UK’s only Down’s syndrome research charity. Click here for a link to their education pages.


Down Syndrome Education International – a national resource for children, parents, carers, teachers and researchers. Devises programmes to encourage children to progress, provides parenting skills and undertakes research.


Inclusively Down – aims to support schools, settings, families and professionals to further develop their knowledge and skills to establish an inclusive learning environment, which meets the individual learning needs of children and young people with Down syndrome.