ASD – Autism Spectrum Disorder
What is Autism Spectrum Disorder (ASD)?
ASD is a condition which affects social interaction, communication, interests and behaviour. In children with ASD, the symptoms are present before three years of age, although a diagnosis can sometimes be made after the age of three. It’s estimated that approximately 1 in every 100 people in the UK have ASD, with the condition being more highly diagnosed in boys than girls. Several interventions are available to help children and parents with this condition, including speech and language therapy, occupational therapy and educational support (NHS Inform, 2019).
Signs and Symptoms of ASD
In young children:
- Not responding to their name.
- Avoiding eye contact.
- Not smiling when you smile at them.
- Getting very upset if they do not like a certain taste, smell or sound.
- Repetitive movements (e.g. flapping their hands, flicking their fingers or rocking their body).
- Not talking as much as other children.
- Repeating the same phrases.
Autism may present differently in boys and girls; autistic girls tend to be quieter, hide their feelings and cope better with social situations, which means it is harder to spot in girls (NHS, 2019).
In older children:
- Not seeming to understand what others are thinking or feeling.
- Finding it hard to say how they feel.
- Liking a strict daily routine and getting very upset if it changes.
- Having a keen interest in certain subjects of activities.
- Getting very upset if you ask them to do something.
- Finding it hard to make friends or preferring to be on their own.
- Taking things very literally (e.g. not understanding phrases such as “break a leg”).
Ambitious about Autism is the national charity for children and young people with autism. We provide services, raise awareness and understanding, and campaign for change. Through TreeHouse School and Ambitious College we offer specialist education and support.
Parent/Carer Support Group and Information:
- ADD-vance – support and empower adults, children and families with Autism, Attention Deficit Hyperactivity Disorder (ADHD) and related conditions in Hertfordshire.
- NAS Hertfordshire Branch – supporting families & people living with autism. Harc is the Hertfordshire branch of the National Autistic Society.
- PALMS – are a family-led service working to understand and support the significant impact of challenges experienced by families of children and young people with learning disabilities and/or ASD.
- Autism Education Trust – The purpose of the Autism Education Trust (AET) is to improve the education of children and young people with autism.
- National Autistic Society – Offers people with autism and Asperger Syndrome, their families and carers information, advice and support.
- PDA (Pathological Demand Avoidance Syndrome) Society – a voice for PDA, running awareness campaigns and sharing information.
- Simple Solutions Workshops – Problem solving sessions for parents/carers of children and young people aged 0-25 with Autistic Spectrum Disorder. This is an opportunity to meet with other parents and carers, to share problems and discuss practical strategies to help move forward. Please note that it is not necessary for your child/young person to have a formal diagnosis for you to attend this session.
- National Council on Severe Autism – Educate the public about severe autism and related disorders, and how they require special attention and services.
- Kids HUBs: www.kids.org.uk/hub / 01992 504 013 (Hertford) or 01923 676 549 (Watford)
- Herts Parent Carer Involvement: www.hertsparentcarers.org.uk / 07840 360245
- ADD-vance: www.add-vance.org
- Hope for Autism: www.hopeforautism.org/Aim.htm
- Angels (North): www.angelssupportgroup.org.uk
- Spectrum Girls: www.aspergers4herts.org/spectrum-girls/ / firstname.lastname@example.org
- Aspergers4Herts: www.aspergers4herts.org/
- SENDIASS: 01992 555847
- Vista (St.Albans): www.vistastalbans.org.uk/ email@example.com / 01727 519224 ext 216
- Facebook groups: https://www.facebook.com/DCAF-Disabled-childrens-access-to-FUN-Hertfordshire-154174694642978/
- SPACE: www.facebook.com/groups/523248431177965/
- National Autistic Society: www.autism.org.uk / 0808 800 4104
- Pathological Demand Avoidance Society: www.pdasociety.org.uk
- The Pathological Demand Avoidance Resource: www.pdaresource.com
- Special Needs Jungle: www.specialneedsjungle.com
- The Challenging Behaviour Foundation: www.challengingbehaviour.org.uk / 0845 602 7885
- Contact – for families with disabled children: www.contact.org.uk / 0808 808 3555
- Mencap: www.mencap.org.uk / 0808 808 1111
- Cerebra: www.cerebra.org.uk / 0800 328 1159
- IPSEA: www.ipsea.org.uk / 01799 582030
- SOS!SEN – Supporting Children and young people with special education needs and disabilities: www.sossen.org.uk / 0208 538 3731
- Transition Information Network: www.councilfordisabledchildren.org.uk/transition-information-network
Pathological Demand Avoidance (PDA)
PDA is a profile on the autistic spectrum. The main characteristic of those with PDA is to avoid everyday demands and expectations (NAS, Pathological Demand Avoidance, 2020).
- Simple strategies for supporting children with Pathological Demand Avoidance at school
- A Teacher’s Guide to Understanding Pathological Demand Avoidance syndrome (PDA)
- A Teacher’s Guide to Understanding Pathological Demand Avoidance syndrome (PDA) Leaflet 2
- A Parent’s Guide to Understanding Pathological Demand Avoidance syndrome
- Recognising Autism Spectrum Disorders in the Early Years
- Keys to Care: PDA Profile of Autism
- PDA Mindmap
- Autism resource library for School staff – please contact firstname.lastname@example.org